Hey everyone, I’ve been part of the NDIS for about a year and have had various support workers. Despite this, I’m really struggling to feel comfortable around them. It’s gotten to the point where I can’t even initiate a basic conversation, let alone express what I want to do during our sessions. I’ve tried changing support workers several times hoping for a different outcome, but nothing changes.
My main interactions are with my brother, who is also my legal carer. However, he’s not very involved in my NDIS planning unless it benefits him directly. This makes me rely more on my support workers, whom I find hard to even let into my house. We end up doing very basic activities like window shopping, which I find stressful. I have many things I’d like to do but discussing them feels daunting. I even avoid activities I might enjoy, like visiting farms or exploring the city, because I’m too anxious about being judged by my support workers. I’m worried I’m running out of options for support workers and that my brother will take over my NDIS plan if he doesn’t see any progress by August.
I’m feeling pretty hopeless and stuck. Does anyone have any advice or has anyone felt similarly? Sorry for the long post, and I might not respond much since I’m anxious even online, but I’ll read all your advice. Thanks!
It might help to have support workers who are closer to your age, perhaps someone in their early twenties, if that’s not already the case. Have you tried using different communication methods, like writing down your daily plan on a whiteboard, or texting your plans and ideas to them instead of speaking directly?
Have you been able to work with a psychologist or a speech therapist on these communication issues? It sounds like something they could help with extensively. Also, if you haven’t yet, consider asking for a support coordinator through your NDIS plan. They can be instrumental in connecting you with the right services and possibly adjusting the type of support you receive to make it more comfortable for you.
It isn’t just about finding the right person; it’s about addressing the root of your anxiety… to state the obvious.
Have you considered speaking to a mental health professional about these feelings? Also, ensuring that your support workers have some background or training in mental health could make a big difference.
I really understand how tough this can be. Maybe start small with your support workers by doing activities that require minimal interaction or are parallel activities, like photography or crafting, where you both are engaged in the task and communication can happen more naturally over the shared activity.