Seeking Guidance on My Child’s NDIS Plan Adjustments

Hi @MountainMystic_1997 I am a provider who works with children (don’t worry I am not going to try to sell anything :joy:). Just thought some of the experiences other people I have worked with might help you.

I would go through your allied health professionals to get a plan review once you have a diagnosis and all supporting documents. I say this mainly because different disabilities require different supports and some of those disabilities have supports the NDIA just expects everyone with those disabilities to need. I also suggest you do it when you get the diagnosis rather than delaying as there can be a waiting period and your current funding will have to last through that (one family I am with had to wait three months to then be told they hadn’t submitted all the documents, then proved they had and were then told a review would happen within another 21 days).

In the mean time I would make sure the supports you have in place are aware of the funding situation and see if any might be able to help you out in the short term in exchange for long term services once the funding is approved. I wrote a piece here that you may find useful Ideas for negotiating for non negotiators.

Depending what area you are in there may also be other services that can help without putting too big a dent in your funding. You don’t really want to make great progress but then go from full supports to no supports for a period of time. Sometimes there isn’t much choice. It can be difficult to navigate, especially when it comes to kids. Everyone just wants to do the best for their children.

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